“Jeffrey Bernard is unwell” was a headline that used to appear with some regularity in The Spectator magazine, apologising for the now late Mr. Bernard’s failure to provide a column that week. It became the title of a play by the now also late Keith Waterhouse, in which Bernard is accidentally locked in his favourite pub overnight. This was because Mr. Bernard was not usually unwell when he failed to file copy, he was usually AWOL and pissed in a pub somewhere.
His reputation as the archetypal louche journalist earned him some fame: a sample of his voice talking about the seamier side of his life appeared on a track by the band New Order; he was often referenced either directly or more obliquely in newspaper and magazine columns (most famously in “The Regulars” comic strip in Private Eye magazine: “Jeff bin in?”), and of course the play by Keith Waterhouse. Bernard was aware of his self-destructive behaviour, and catalogued his four marriages, his Bacchinalian excesses, his descent into ill health, and the contemplation of his eventual death both in his columns (when he bothered to file them) and in his book Reach for the Ground: The Downhill Struggle of Jeffrey Bernard.
Now anyone who knows me will know I have a fondness for the grape and the grain, and that I list my interests on another website as “writing rubbish all over the internets”, but that’s not why I’m writing about Jeffrey Bernard. I am not locked in a pub after falling asleep on the toilet after a skinful. Neither am I about to ditch my wife for a younger, dumber model. I am writing about Jeffrey Bernard because I have myself become unwell.
I have been asthmatic since I was a teenager, about twenty-five years or so, and it has never bothered me much, but more importantly it has never stopped me doing anything. I could exercise, I could ride my mountain bike, I could play the drums all evening, I could sing at the top of my voice, I could swim a length of the pool underwater, and as long as I had my antihistamine tablets and my corticosteroid inhaler, my asthma did not affect me at all. I could effectively ignore the fact that I had a chronic health condition that kills 1,400 people per year in the UK.
A few weeks ago I contracted a throat infection. No big deal, I usually get them in the winter, and I know how to deal with it: plenty of garlic, chili and ginger in my food, Sanderson’s Throat-Specific Mixture (a favourite with actors and singers – also known as Sanderson’s Throat Horrific), and a wee hot toddy at bedtime (in extremis, I have been known to chew a bit of raw ginger and then not talk, eat or drink for a couple of hours afterwards. It works, but traumatises your taste-buds for the rest of the day).
The throat infection went away, as they do, but it left me feeling weak and tired, and with a nasty productive chest cough. “I’ve got a chest infection” I thought. No amount of ginger will work on that, you need antibiotics (not homeopathy, prayer, or the laying on of hands), and as I work with people who have chronic chest complaints like COPD, mesothelioma and bronchiectasis I need to make sure that I can’t be infectious to them. So I went to see the doctor.
The doctor was great, I cannot fault his consultation at all. I hear so many horror stories from patients and other health professionals about doctors who pull diagnoses and treatments out of thin air, but this guy checked me out properly, took a good history, and asked me all the right questions. I don’t have COPD, I’m not a smoker and it’s my first chest infection in about ten years (although I am in the age bracket and I have a productive cough, so well worth asking).
I am asthmatic, and my peak flow is down significantly from its usual level (on a good day, after exercising, I can bounce the indicator off the stop of the peak flow meter at 800; first thing in the morning I am usually 650 – 700; now I am 500 – 550, even after I expectorate and take my inhalers). But I didn’t have a chest infection. My sputum was the wrong colour, my chest did not sound heavy enough, and I did not have a temperature. What I had was an exacerbation of my asthma.
I don’t get exacerbations. People who are ill get exacerbations. The people I work with get exacerbations, but I don’t because I’m healthy. I am healthy, aren’t I? I am not in denial, am I? Well yes, I am a bit. I’m getting older (not old, but older), and things stop working as well as they did. A couple of years back I broke a toe messing about in the pool on holiday. The doctor told me “As you get older, your bones get less flexible and break more easily than when you were younger”. Older? Me? Denial? I know about exacerbations. I learned all about them for working with my client group. I didn’t learn about them for my own benefit, though. I don’t have exacerbations, other people do.
There was a running joke at a former workplace of mine: “A wee cough? A week off!”. This isn’t a week we’re talking about here. I’m a month in and I feel worse than when it started. The doctor said “Try upping your steroid inhaler for a couple of months, and if that doesn’t work we’ll put you on something stronger”. A couple of months? Something stronger? Healthy people like me don’t do ‘a couple of months’ of coughing, and we don’t do ‘something stronger’ unless it is amber-coloured and comes from Islay. This is interfering with my lifestyle, it’s affecting my work, and it’s pissing me off.
The thing that really worries me though is that I might have to learn to live like this. All the time. No, I can’t play football with the boys, I might get ill. No, I can’t climb Ben Lomond for charity, I might get ill. No, I can’t carry my drum kit down to the car and go and play a gig, I might get ill. I am not sure I am ever going to be ready to live my life like that. I am certainly not ready to live my life like that right now. I am not ready for poor health. I am not ready for self-handicapping in that way.
Now I don’t want this to sound whiny and self-indulgent. That is not why I am writing this: I completely accept that as I get older my health will get worse, and I will not be capable of doing the things I was capable of in my youth. What I am struggling with is that I feel that I lack proper control over my own condition, and that I have lost control of it very recently. My health is mine. My illnesses are mine. For twenty-five years I have been managing my asthma just fine, thank you, and I want to keep it that way. I went to the doctor, and he took a good history, asked me all the right questions, made what I know to be good clinical recommendations; and yet somehow I still feel that I have lost some aspect of control of managing my condition. Now why is that? What went wrong? Why did I feel that I lost control?
Control, as it happens, is extremely important. My doctor did his best, and delivered bad news well. He gave me good advice, and will pursue me for a follow-up consultation. He’s a good doctor. That does not mean that he took control of my condition away from me. He did the right thing, and did it well, but in doing so he inadvertently made me feel disempowered. Control of my condition must have passed from me to somewhere else. Probably the doctor took it away from me.
No, not really. It was not my doctor’s fault: it is the human condition that made me feel like that. Here’s some science stuff: Julian Rotter (1954) came up with the concept of ‘locus of control’: if you have a high internal locus of control, you feel that you control a certain aspect of your life, and that the external locus of control is low; if you have a high external locus of control, you feel that the aspect of your life is not under your control, and that somehow others now control what happens to that aspect of your life, and you have low internal locus of control. Right now I feel that I have low internal locus of control over my asthma, and therefore a high external locus of control. So of course I look for the external locus, probably in the place where I lost my internal locus: in the doctor’s surgery.
So far so good. I feel I’ve lost some aspect of control, and I blame someone else for that. What I feel fits the theory. But what am I going to do to get control back, to take charge of my condition? Right now I want to take control, my social circle will support me in that, and I know it can be done. More science-ey bits: the Theory of Reasoned Action (TRA – Fishbein & Ajzen, 1975, 1980) combines three social psychological concepts in a very logical fashion: the person’s Behavioural Intention (BI) towards something is equal to their Attitude (A) towards that behaviour, plus the Subjective Norms (SN) of their community / peer group / whatever towards that behaviour.
I intend to get my health back (BI), I know that it can be done (A), and I can get support from my social circle (SN). All boxes are ticked. So why is it not happening for me? In most cases, the TRA is absolutely fine; it predicts all sort behaviours, but with certain other sorts of behaviour it doesn’t work out. If you are talking about behaviours that are easy to control, like remembering to feed the dog or set the burgular alarm before leaving the house, the TRA is a good analysis of the situation. But for other behaviours like giving up smoking, learning to juggle, finding love, it doesn’t work at all.
That’s why Icek Ajzen came up with an alternative / overarching theory: the Theory of Planned Behaviour (TPB – Ajzen, 1985, 1991). There is another concept to build into the model: the degree of Perceived Behavioural Control (PBC). The person has a Behavioural Intention (BI), and an Attitude (A), and everyone has a Subjective (Social) Norm (S(S)N), but if the person has a great attitude, their attitude complies with the subjective social norn, but they don’t believe that they can control what is going on, then the attitude, the norm and the intention count for almost nothing. According to the Theory of Planned Behaviour, perception of control is more-or-less everything.
So, I think I should apply the TPB to my current situation. I feel I have lost control (PBC), which trumps my intentions (BI), my attitude (A), and what I perceive the norm (SN) to be.
Bingo.
It doesn’t seem to matter what my intentions are, I just don’t feel that I am in control of the situation. So what am I going to do now? How am I going to get control back? Tricky, but not insurmountable. However, I am aware that I have been writing this post for a couple of weeks now, and that I should probably just publish and be damned. I will write up what I intend to do about it later. Do me a favour, though: make sure you hold me to it.
Happy Monkey, one and all!